Charity

The Cystic Fibrosis Foundation is the world’s leader in the search for a cure for cystic fibrosis. CFF funds more research to find a cure for the deadly disease than any other organization, and nearly every CF drug available today was made possible because of Foundation support.

Eric Cassalina(now 20) and his sister Jena (1993 – 2006)

Gavin Baker (10) and Jake Baker (12), Roswell, GA

 

CFF is a nonprofit, donor-supported organization dedicated to attacking cystic fibrosis from every angle. Its focus is to support the development of new drugs to fight the disease, improve the quality of life for those with CF, and ultimately to find a cure.

The Foundation funds and accredits a national care center network that has been recognized by the National Institutes of Health as a model of care for a chronic disease.  It is one of the most efficient organizations of its kind and is an accredited charity of the Better Business Bureau’s Wise Giving Alliance; 90% of all dollars go directly to research.

In January 2012, the FDC approved Kalydeco, a CF treatment that is life-changing for 4% of CF patients.  Kalydeco is a direct result of the fundraising and research dollars that come from the Foundation’s grass roots fundraising efforts.  Cystic Fibrosis can be cured in our lifetime.